The aim of the GRDR program is to develop a Web-based resource that aggregates, secures and stores de-identified patient information from many different registries for rare diseases, all in one place.
Collaborating to Advance Rare Diseases Research
NCATS and Harvard are collaborating to advance rare diseases research to benefit patients.
Work with Us
Find out more about how your organization can collaborate with the GRDR to advance rare diseases research.
The NIH/NCATS GRDR® Program
About the GRDR
Find out how GRDR experts are creating a resource for rare diseases researchers across the world.
Common Data Elements
Learn about CDEs and why they are crucial to global patient registries.
Biospecimens & Biorepositories (RD-HuB)
See a list of Rare Diseases Human Biospecimens/Biorepositories (RD-HuB) compiled by NCATS for the GRDR.
Why the GRDR Matters
The ultimate goal of the GRDR program is to provide a “one-stop shop” for rare disease data from registries across the world. Through the program, NCATS will give patients, health care professionals and researchers access to information about multiple rare diseases through one central resource. Studies driven by GRDR data could lead to improved therapeutic development and quality of life for the many millions of people who have rare diseases.